What a day!
When we arrived at the PICU, the Attending doctor came to have the Do Not Resuscitate talk with us. After talking to the ENT, she had changed her stance on Carter needing more time. His trachea has collapsed so much that there is no way that he wouldn't need a trach with a vent. The Attending had decided against the chest CT yesterday because she felt it was unecessary, but went ahead with it today.
In the afternoon we called Carter's Pulmonologist doctor and talked through it with her. Unfortunately, she felt the same way except she thought that with time he may be able to come off of the vent.
We continued to struggle through the decisions we had to make. Should we trach and vent him, or should we just let him go. I hate that we are in this position...I just don't feel like we should have to be the ones to decide the day that our baby grows his wings.
At six o'clock the ENT finally came to talk to us, but first he took a look at the CT results.
What he found gave us even more hope.
Carter's heart and blood vessels have shifted to the right which is causing his trachea to collapse.
The ENT told us that there is a possibility that a surgery may correct it, but he would have to pass the case to the Cardio-Thoracic surgeons. We will probably hear back from them tomorrow or Friday. He said that he didn't want to give us false hope, but that he knows that they do surgeries like this a lot. Whether they can fix Carter's shifting or not would be up to the heart docs.
The surgery would be extremely risky as it is basically an open-heart surgery, but it's better than the alternative in my mind. Especially since the shifting will most likely only continue to make his airway worse.
We have renewed hope, and I feel as though we have some direction as to which path god wants us to follow.
Thank you again for all of your prayers and support. Honestly, they are what have been helping to keep us going the last few days. Please continue to pray for Carter and that the doctors find the wisdom to be able to do a surgery to save our baby.