May 28, 2010

Sunday

We heard back from the Cardiologist and Cardio-Thoracic surgeons today.

They do not believe that a surgery would help Carter's airway. His airway is so damaged, and the part that could possibly be compressed would not make a difference. The ENT said that this is the worst airway he has ever seen. With such a very low chance of this surgery working, we have chosen to not pursue it. Our baby boy is suffering, and it's time to put a stop to all of the torture he's been through.

We have chosen Sunday as the day that God will choose whether Carter will continue to bless us in this life, or grow his little wings and join his Grandpa Mike in heaven. The doctor will remove his breathing tube, and see what Carter does. If he is struggling, they will give him some medicine to make his passing painless. As bad as all of this sounds, we really are at peace with this. We feel like our little guy has been through enough, and we pray that if he does pass...it will be quickly.

Tomorrow is a day filled with blessings, visits from friends and family, and a photographer from Now I Lay Me Down To Sleep.

Thank you so much for all of your prayers and support. I know that some of our readers have been with us from the very beginning and have shared in this journey with us. This sweet boy has touched so many lives in his short 14 months. I am going to ask you one more time to pray for little Carter. I'm asking you to please pray for peace for him....whether that be from breathing without a machine, or growing his little wings. The little guy just needs peace.

41 comments:

Jan said...

Oh Heather, my heart is aching for you, Carter, and your family. What a journey you have been on. I am praying for you all.
Love, Jan

Heather said...

Oh no. I'm so sorry. This is hard to fathom. I will continue praying for your sweet Carter and for you and your family. So heartbreaking. Lots of love to you. Again, I'm so sorry.

Ms. Theresa said...

TIME, I love you guys. God Bless you all. He has a plan for Carter. <3

Anonymous said...

A friend sent me the link to your story. Your little boy is so precious.

My son faced many medical issues his first 3 years of life including severe tracheomalacia, damaged lungs, and other airway issues. He was trached and was on a vent for about 1.5 years. He eventually outgrew all of his airway issues.

We are fortunate to live near Cincinnati Children's Hospital which has the world's best pediatric airway docs here. They get children from all over the world here to visit Dr. Cotton. If you have any reservations about your decision, I would suggest giving them a call to discuss his issues.

My husband and I were faced with a similar situation with our son, but I believe God miraculously intervened on my little boy's behalf. We were at peace with the decision of letting him go if that was what God had planned for him. I know what it's like to just want your baby to no longer have to suffer and be hooked up to all the medical equipment.

Prayers for comfort and the peace that surpasses all understanding during this challenging time.

Amber said...

Carter and your family are so strong. God will take care of your little man. Blessings. Carter's friend Carter gives him hugs and kisses.

Sidewinder Photography and Design said...

I am so sorry to hear this you guys. I know you say you are at peace with it but it has to still be so hard and I can not even imagine. Nor do I ever want to.

God defiantly knows what he is doing and whatever happens he always takes care of his little ones.

We love you guys. If you need anything ever let us know. Seriously.

Michelle said...

Praying...

Junior said...

our love, prayers, and hugs are with you.

ginny said...

heather, i'm so sorry...my heart is breaking for your family...peace to all of you....

Sherry C said...

Heather I'm so sorry, I'm praying for a miracle for little Carter. Sending you such big hugs. I'm thinking of you non stop still. I like what Anonymous said I wish there was something the doctors could do for him. I'm so very sorry.

Heidi said...

Heather, my heart is breaking for your little family! Please know that you have all of my prayers!

Yoli said...

Heather, I will continue to pray for Carter. Many hugs to you.

Colleen said...

I'm at a loss for words. This is so heartbreaking. I will pray for peace.

Lyn from PA said...

I wish I knew what to say. We pray for your family every day. Today my daughter and I will be adding a Butterfly bush to our garden. Every time I look at it I know I will be thinking of Carter, Mikey, and Jovie.

Leah W said...

praying for that beautiful boy!

The VW's said...

Praying!!! May God fill you up with His peace, grace and strength! Love, Hugs and Prayers!!!

Sandi said...

I'm praying for peace and comfort for you and your family during this time.
I am so glad to hear that a Now I Lay Me Down To Sleep photographer is going to take pictures. I know that will be so special for you.
I remember the day Carter was born. Your faith and strength during the last 14 months have been a humbling thing for me to witness. I think you are amazing.
God HAS had a plan for Carter. He has touched so many people, me included. Thank you for sharing him with us, and allowing us to love him too.

Paige said...

Praying today for Carter and your family!

Kelli said...

We are praying for your whole family Heather...special hugs to all of you.

Tina:0) said...

Sending many prayers for your family & a sweet baby boy! May God blanket you with strength & peace!

Hope said...

I'm praying for your family and for sweet Carter.

Becky Kankelfritz said...

Oh Heather,

I'm sitting here, my eyes filled with tears. We have all grown to love Carter so much. And you are an awesome momma who took on the role of "special momma" with such a fantastic attitude and optimistic spirit. You have been and continue to be an inspiration to me.

I continue to pray for Carter. For the peace that he needs. Big hugs being sent to both of you.

Lori said...

hugs and many many prayers
love u guys and praying for peace

Allison said...

I'm so sorry. I don't even know what to say. TIME for you all. You all are an amazing family. Love and prayers for you all.

Brandi said...

Heather, I have no words right now, just heartfelt tears - and lots of them! We have all grown to love Carter so much and he has a special place for us all.
We will be holding a special Fast tomorrow for Carter before they take him off the vent and will be praying that whatever our Father in Heaven chooses to do, it is in His plan. Extra prayers too will be going to Jovie and Mikey for peace and understanding for them if Carter does not come home with you.<3
Much love to you you all! <3

Lacey said...

Love you guys. I want to come up and meet Carter and you today if thats ok!

Anonymous said...

I know you don't know me but Carter is a blessing and a miracle. God will love him more than we ever can imagine.

Justin and Victoria Nelson said...

we are praying and holding you guys very close to our hearts...
xo,
victoria

Jenn said...

You are not leaving our thoughts and prayers for a second. We love you and are lifting you up!

Jaci said...

Praying for sweet Carter and your whole family.

Nana said...

Dear Team Carter, I pray for all of you that God will give you a peaceful answer. Jay should not have to suffer any more. May God's blessings be with you all!! Love, Colin's Nana

audrey enloe said...

I just wanted to let you know that I am praying for you and your family at this time. I am in Dallas Texas and wanted you to know that you are getting support from prayer warriors all over. Bless his heart and yours. May the Lord give you the Peace and comfort that only He can provide during this time. Please keep us updated on this sweet sweet being that the Lord has so graciously placed in our lives.

Phyllis said...

I am in disbelief. In my heart I still do not believe it is time for Carter to "grow wings." Call it denial, call it hope but I am still praying for a miracle. I am praying that God will intervene on his behalf and provide healing. I cannot begin to imagine what these last few days have been like for you. I have been thinking of you guys non-stop and praying for strength for you all. You are an amazing family!

Anonymous said...

I have no words other than to say that I am continuing to pray for Carter and your entire family.

Sweet Pea's Mommy said...

My prayers are with Carter and your entire family in this difficult time. You are amazing and your strength is incredible!

Anne and Whitney: Up, Down and All Around said...

i am just so sorry that little carter and your family are going through this unbelievably difficult time! saying prayers for carter and for all of you!!!

Angela said...

Heather my heart is breaking right now. I am praying for a miracle, and for God's mercy and grace to cover you and Carter like never before. Love you guys.

ANewKindOfPerfect said...

Heather I am so sad to read this update! I can hardly see the monitor through my tears. Your little Carter has made a huge impression on me. I just came from reading that another blog kiddo earned his wings today, to your blog. What a heavy day it is.

I will be praying for a miracle tomorrow. I hope you can feel all the prayers that are being said for Carter and your family.

Drayke's Mom said...

Hugs and prayers for your sweet little man.

Alicia said...

Your sweet Carter will be on my mind and in my heart tomorrow. I will pray for peace, not only for Carter, but for you as well. Fall into the arms of the Lord and He will comfort you.

Jhari said...

Oh I'm sitting here down with tears... I was blog hopping and I came across your blog. Giving you and your family all the love in the world right now. HUGS!!!! ~jhari