I can't even think of a title for this post.
My heart is broken, and I don't even know where to start.
We got the worst news possible today after Carter's scope of his airway.
They found that he has severe Tracheomalacia. Basically the cartilidge that holds his airway open has collapsed by 90%. It's along his entire airway, and is so bad that they aren't even sure that a tracheostomy would help him. The doctor thinks that it's been progressing for awhile, and this last intubation just sent the little guy over the edge.
We are stunned.
The doctors can't believe that he's been breathing on his own so well for this long, and it sounds as though they aren't sure that he'll ever be able to breathe on his own without a ventilator.
They are doing a chest CT on him tomorrow to be sure that no major blood vessels are causing the malacia, but the chances of that being the problem are pretty slim and even if that is the problem, it would mean a pretty major surgery that we aren't sure would work. We just don't know how much more we can put Carter through.
We have some major decisions to make over the next few days...decisions that I thought were at least years down the road. We know that God has a plan...he always has for Carter even if we wish it were different.