April 7, 2009

Please Pray

Today was a not so good day. Little Carter still isn't getting any better with his infections. He now has it showing in his spinal fluid meaning that he has a form of Meningitis. The Infectious Diseases team assessed him today, and think that one of his IVs may be the reason that he wasn't getting any better, so they stripped him of any unecessary IVs and the catheter. Our wish came true, and he did lose some luggage, but not in the way we wanted. Sometimes you really do get what you ask for. They think that he may have an infection in his heart as well, and are going to do an echocardiogram tomorrow to see. His liver is also very enlarged, but is functioning properly so he will be getting an ultrasound on that tomorrow as well. They switched up his antibiotics to see if that will help. He really needs prayers that he can shake this infection.

We also met with the ENT, and as soon as Carter is better they want to do the scope down his throat. They want to check his airway for any possible clefts which could explain his breathing problems. This is tentatively scheduled for Friday.

The Geneticist got the Chromosome tests back, and confirmed that Carter has an abnormality in one of them. I'm not going to go into all of the mumbo jumbo, because quite honestly, I didn't understand all of it, but basically Carter has a small part of one of his chromosomes missing and it is replaced by something else. They are going to do further tests to find out what it is so we can get an idea of what Carter's future looks like. The Geneticist told us that since he has a Chromosomal problem that there is a 95% chance that he will have some sort of mental disability. There is a wide range from mild to severe that he could have, so we are going to stay hopeful that it is in the mild range. Either way, we know that Carter is a very special little boy and we are going to do EVERYTHING we can to make sure that he lives life to his fullest potential. We know that all of our family and friends will help to support us in giving Carter the love and care that he needs. God most definitely sent us this little blessing for a reason, and we are ready for the challenges that lie ahead. While we know that this was important news, we want to focus our efforts on getting him past this infection so he can improve on his eating and breathing. We're very ready for him to come home.

10 comments:

Snarky Mom said...

Continued prayers for Carter and your family. If you don't mind sharing, which chromosome has the translocation? As you well know, I've had to become well versed in chromosomal disorders over the past few years. Praying that he kicks this infection quickly and comes home soon.

Carlson Family said...

My daughter Gracie has been praying "for the little boy who is very sick on the blog."

He's in our prayers.

Rachael said...

Our prayers are with you and always have been since the day Carter was born. He is a strong little guy and all though it not fair that they are given these trials they some how pull through. We love you guys, hang in there.

Moosman Fam said...

You and little Carter are in our prayers.

The Bender Family said...

Oh Heather! I'm so sorry! He is a tough little guy. You have so much faith! Hang in there. You're in our prayers. He's so lucky... He has so many people who love him. Good luck, we're thinking of you!

Phyllis said...

Oh Heather, You are such a strong mother even though you may not feel like it right now. My heart is breaking for you. I hope Carter can get through this infection so you can have all your little ones at home together. Our family continues to pray for you and Carter.

Allison said...

still praying for your family. <3

Kendal and Alissa said...

I am Laurel Holje's sister and I just wanted to let you know that we will be praying for Carter in our home. ( I hope you don't mind me reading) I am so amazed by your strength as I read your posts.

Jenn said...

Praying for baby Carter and all of you!!!!

kankelfam said...

Continued prayers, Heather!